I really haven't ever been one for oversharing on the internet, but given the circumstances I thought it would be easiest to keep friends and family updated on my journey all at once. My close friends know that I have always been more of a private person and do not like to show weakness. I don't have a choice now about being vulnerable to the world because I am raw, I am hurting and I am terrified. I will need my friends and family more than I ever have in my entire life. I am forced to ask for help as I can't go it alone and who would want to!?!
Almost a month ago, I was diagnosed with a type of benign brain tumor called an acoustic neuroma (AN). Seriously, who finds out they have a brain tumor while they are pregnant!?! It is surreal knowing that I have this little life growing inside of me while this tumor is also growing trying to threaten my life.
Mine is one of the large ones. I guess I don't really do things halfway...even tumors. ANs are benign tumors and for this I am grateful. But benign tumor in the brain does not mean without consequence. It will require a long, technically demanding surgery that will leave me completely deaf in my left ear. Due to the tumor size, I am limited in the approaches that the surgeons can take. The approach we are going with gives me the best chance of preserving left sided facial function. (great info at www.anausa.org and www.houseearclinic.com) Most importantly, I have found a wonderful surgical team in LA. So shortly after the baby comes, we will make the pilgrimage to LA for 2 weeks as I have surgery and start to recover. Recovery is different for everyone, but my little guy will be extra incentive to heal quickly.
I am blessed to have the most amazing husband to hold my hand through this journey. God knew what he was doing when he chose Michael for my husband. I couldn't make it through this without him...I am a better person because of him. Some days I feel like we've crammed 40 years of marriage into 4. I often think back to our wedding day and wonder if someday we could be that couple again....you know free of worry and unimpeded dreams for our future. But I wouldn't change how strong we have grown as a couple. I love him more every day.
I also have such supportive parents. I know it can't be easy watching their child suffer. They raised me to be a strong and independant woman...but I will ALWAYS need my mom and dad. Mom is coming to LA with us to help take care of the baby and Dad will be watching our furry babies at home.
To my wonderful friends...thank you. Thank you for reaching out with emails, texts and phonecalls. I am so sorry that it has taken me awhile to respond. It is just so exhausting for me to retell my story and to go through emotional journey with each of you that mean so much to me. But please know it means the world to me to hear from you and hear words of encouragement. It keeps me going...truly. I am humbled by the outpouring of support from both likely and unexpected places. Its unfortunate of circumstances to have this kind of revelation, but I believe that it is God's way of reminding me that I am blessed despite this life challenge directly in my path.
To be quite honest, as many of you know, conceiving a child was extremely difficult for us. The tragedy of losing our little girl will haunt me forever. We were about to start IVF last fall, when I found out we were finally pregnant again. I took a pregnancy test just to be safe before starting the heavy hormones necessary for IVF. I felt like I was witnessing a miracle when that test turned positive. I do know that these experiences allow me to appreciate the miracle of life more than 99% of the population. My little man has no idea how much he is loved and wanted already! So when I start to go off into a dark place of self pity I try to remind myself of how I felt that day when I learned we were expecting...extremely lucky and blessed.
I am not going to lie, it was really hard to get out of bed for awhile. I was feeling immense sadness and fear. But I have now come to the realization that I own my attitude. I need to stay positive and embrace the present. Tomorrow isn't guaranteed for any of us. So my new motto is to live a life worth saving. Right now I need to focus on the health of my baby. He is my priority. I may get beat up a little, but I will do what it takes to make sure his life starts out on the right foot. Who would have ever thought I would be learning to take my first steps again just months before he does :)
I know I am getting long winded, but this blog will also be my own therapy for dealing with the flood of emotions I don't know what to do with. I will stop by as I have any updates, so check back if you so desire. It is easier for me to put it all out here at once...
So my love to all of you reading this...hang on tight! Here we go...Me vs. Brain Tumor....I win!
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Why do you win? ....cause I win!
ReplyDeleteThis is a great outlet...stay strong and hang on, we'll get there!
I'm happy to post updates after surgery until you're ready to resume.
Kris, Mike,
ReplyDeleteMargaret and I are praying for you and are there for you in anyway possible. Please don't hesitate.
Love you!
KRIS!!! Wow...cannot even imagine what the last few weeks have been like for you! PLEASE know that you, Mike, and baby Siwek are in our prayers literally every day and think of you often! Call me whenever- I TRULY understand how tough it must be to keep EVERYONE who loves you up to speed. So nice to read your blog and get a sense for how you are feeling and how you are doing! Keep on keeping on lady---you are such a strong person and I KNOW you will make it through this stronger and a person to admire even more than you already are today.
ReplyDeleteLove you Kris and Mike,
ReplyDeleteThanks for the update. This is going to be a Journey but know you are not alone. We are here for You, Mike and your little man whenever you need us. We will keep praying hard for you. Stay Strong!
Love,
Sara, Brian, Alec and Samantha
Kris and Mike, You two are the sweetest, most bravest warriors here on the planet.!!! You do win!!!! You will get through this all! With all of us cheering you on, praying for you, and more importantly ; God is with you and baby and He will see you through!This Blog is AWESOME, thanks for be willing to be honest, and true and share your lives and hearts!
ReplyDeleteHugs from Donnalynn from Canada xox
I love you, Kris!! I think about you EVERY day. You're a tough cookie. You can do this! I'm grateful that technology allows us to stay connected even though I live 2,000 miles away. LA is a very short plane ride from Reno, so if you're up for visitors...
ReplyDeleteI know this is tough for you to talk about, but if you ever feel like a chat, I'm here, and Jamie has been great at keeping me updated. Talk to you soon!
Jen
Kris,
ReplyDeleteThis is great and I know how hard it is for you to share...but you're right, it will be good for you, as well as good for all of us to keep updated.
We pray every day for you. I continue to pray that God will give you strength when you feel weak and courage when you are scared. I do believe it miracles and I know his grace will shine through not only the birth of your little guy, but your recovery as well!!!!
Kris - you've always been strong and this will be no different. You will have a wonderful baby in just a few short months and then a few short months after that you'll have nothing to worry about but being a great mom!
ReplyDeleteHi Kris and Mike! I like No. 3 --the one about shit; because you will have a gigantic shovel that can stop anything coming your way and with your supersonic swing, you will toss it back! We love you guys AND you are on a lot of prayer lists in Georgia. Love, Aunt Betty and
ReplyDeleteUncle Jack
Kris,
ReplyDeleteThinking of you & Mike (and Baby Siwek!) and praying for you every day since we heard this difficult news. You have certainly been through A LOT already and I really admire your strength. You will be such a wonderful mom for your little boy!
Love, Kerry & Eric
Kris, We are praying for you, Mike and the Baby. We know you have the strength for the journey you all are on. Just think about this as one chapter of your life, and the end of this chapter will start the next one which will lead to a long and wonderful long love story. We think and pray for you.
ReplyDeleteLove, Aunt Paula and Uncle Steve (Wold)
Your Mom loves you. Your Dad loves you. Stoli loves you. That's the (con)census from our home. You are, among other things, a great Daughter. There are no words that can express completely how proud your parents are of you and what you have accomplished. There is much more ahead of you. Nothing has come easily for this Daughter. But you will prevail. This tumor will go down in defeat. 10 run rule. Kick B***
ReplyDeleteDearest Kris, Mike, & Lil man siwek-
ReplyDeleteWe're your cheerleaders on the sidelines (Nibbles will the be mascot)! We have been thinking about you and your family and you've been in our daily prayers.
This stupid tumor has no idea whats coming to 'em, and its messing with the wrong girl!!
You and your family are amazing. And I'm so proud to say you are my friend. I'm so proud of your steadfast resilience in this journey. This blog is SO AWESOME. I love it. I love the outlet its hopefully bringing you, and I love being able to hear how you are doing. This journey is not an easy one, and its rough road ahead. BUT this will all be over with before you know it!!!
We are constantly sending you love and prayers from Chicago.
love you- Tricia & Jason
Kris!
ReplyDeleteThis is so amazing. I am so proud of you, I know we have lost touch but reading this has brought tears to my eyes. My thoughts and prayers are with you and Mike and everything will be okay because you are such a strong and determined woman.